Boxes checked

We found out back in November that our insurance would be changing 1/1/18.  Nothing like adding more excitement to the Norman situation! However, Jake’s employer was kind enough to give us the heads up so we could check to see if my doctors and the hospital would still be in-network after the change.  Thankfully, they are, but the 1/1 change meant that I’d have to wait another several weeks before requesting “official” approval from insurance that I can have surgery on 1/23.  (I’ve only been “penciled in” all this time.)  I called UCSD today to provide them with my updated information and let the patient navigator know that the university should be able to contact my insurance to request the approval.

More waiting, but we keep moving forward.  Plane tickets are purchased, I have all kinds of pre and post-op appointments scheduled, and once I know the date is “official,” we plan to book a VRBO property for the time we’ll be in CA.

T minus 20 days…

Happy Pill

When we visited my aunt and uncle in Duluth this past fall, the kids saw that they had a happy pill that giggles when you squeeze it. Apparently Shecklet #3 talked to Jake after that trip and decided that she wanted to give me one for Christmas to take to San Diego. (She thought I needed to have something to cheer me up when I’m recovering.) They ordered one from Amazon and she did a great job at keeping her present a surprise. Love this kid’s big heart and thoughtfulness ❤️

T minus 1 month

I had a tearful realization this afternoon that carried over to mass this evening.  I’m one month from my surgery date.  The flood of emotions was overwhelming and unfortunately, I didn’t bring enough tissues with me to church.  The girls were so sweet and tried to comfort me.

The Last Jedi

The boys have been anxiously awaiting the release of the latest Star Wars movie. Jake and a friend went to see it last night, so he asked if I wanted to take the boys this afternoon. We got tickets for the 1:15 show and the boys loved it!

MRI #2 – results

My primary doc messaged me today and shared that my tumor has not changed in size since my initial scan!  This news is a huge relief since I’ve been feeling an increase in pain/pressure and a decrease in my hearing the last few days.  At least I know those symptoms aren’t a result of Norman’s growth.

MRI #2

Part of my pre-op prep involves another MRI scan – with and without contrast.  My initial scan from August would be 5 months old by the time I have my surgery, and the doctors require a scan that is no older than 4 months.  The order from California was faxed to my clinic this morning and the radiology scheduler was able to book an appointment for me this evening.  Once I have a CD of my scans, I’ll be able to upload them to the UC San Diego portal for the doctors to review.  I have noticed the presence of Norman more these last couple of weeks and am praying there has not been an increase in growth over the last four months.

Selfie

I’m not big on pictures of myself.  Never have been (as an adult, at least.)  I’m pretty self-conscious, and thus, tend to shy away from having them taken.  I know of at least one article out there on the interwebs that talks about how it’s important for you to take pictures with your kids and for them to see pictures of you as an adult. Not just formal family pictures, but everyday, no make-up on, real life pictures.  As I approach my surgery date, I’m trying to be more open to that – though I wish that wasn’t the reason for my change in perspective.  I have no idea what the impact to my facial nerve is going to be post-surgery.  As I look back on pictures from the last several years, I can see that when I smile, my right eye doesn’t close the same way as my left.  It’s not something that anyone else would likely notice, but I do.  My hunch is that Norman is to blame.

I continue to pray that the only side-effect from the removal of the unwelcome guest in my head will be SSD and nothing else long-term. I’m trying to keep my anxiety over the unknown that I cannot control, in check.  On a related note to that, the number of people who continue to come up to me and tell me they’re praying for me and my family continues to blow me away.  And I know it’s people’s prayers that are getting me through this time of waiting.  How appropriate that we’ve now entered the season of Advent.

The reason for today’s selfie is to document my current ability to smile as well as my new haircut.  I had coffee with a friend this morning and afterwards, instead of going home to pick up the house, I decided to shorten my locks.  I realized last week that when they shave the section of my head for the incision, my current haircut would look really lop-sided due to the layering I had.  I had about 4 inches chopped off and now it will hopefully hide the incision a bit better next month.

Playing surgeon

While reading to the girls tonight, Shecklet #3 started asking me questions about my upcoming surgery.  While I’m not about to go into the specific details of what the surgeons will have to do (I’m actually keeping some of those specifics from myself as well,) Jake and I have promised the kids to answer their questions honestly.  After we talked about stitches, the reasons why it is good I’ll be “asleep” during surgery, balance, and the unknowns surrounding my recovery, Shecklet #3 asked if she could pretend to be the surgeon who takes out my tumor.  She brushed my hair aside (which she said was her pretending to shave the spot where they’ll have to make the incision behind my ear,) gathered her surgical “tools” and ever so gently removed my tumor.

I have amazing kids.  They continue to handle this entire scary situation with such poise and honesty.  And I’ve been able to draw strength from that.  I have told Shecklet #3 numerous times over the last month that if I have even a fraction of the courage that she has shown throughout her fingertip injury, I know I can get through what I’m facing in January.

T minus less than 2 months…

HBD to me!

We have lots to be thankful for this year and started Thanksgiving Day/my birthday by attending mass as a family. After mass, Jake and the kids surprised me with birthday presents.

I’m thankful for my family and the opportunity to spend another year loving them ❤️

Celebrating another milestone

I’m turning another year older in a few days – and it’s a “special” birthday.

My friend, Michelle, planned a get together at a local restaurant and a great group of friends showed up to help me celebrate! I wish I had had our server take a group picture of everyone, but one of my friends did capture these pictures for me. (The lone color one is of the ladies I know from our old parish – several who have known me since before we had kids.)

In the invite, Michelle offered to put together a spiritual bouquet for me. On the vase that held 40 roses are the prayers she collected. I can’t tell you how much the love, support, and friendship of the ladies who came tonight (and many others,) means to me – especially as I close in on the “T-2 months til surgery” mark, which coincidentally is my actual birthday. I am truly blessed to have so many beautiful women supporting me in the rough times and celebrating with me in the joyful times. ❤️