Many faces of Shecklet #3
This is what happens when you give your phone to your 7 year old as you’re driving.

This is what happens when you give your phone to your 7 year old as you’re driving.

Three of the Shecklets spent the day win Nana out at Echo Hills with Rio and Kid. They had a picnic in the small, green pasture, rode horses, and then ended up back at Nana and Papa’s house for dinner. Shecklet #2 and I missed out on the fun due to not feeling 100%, so we laid low and enjoyed some movie time together. I finally got to see Rogue One 🙂
It’s hard to think about scheduling major surgery when you really don’t feel “that” bad, and from the outside, people can’t tell that something is wrong. Most days I carry on like nothing is the matter and forget that I have an unwelcome guest inside my head. It probably helps that there is always plenty going on in, out, and around our house. But nights like tonight push reality in my face. I just clicked [send] on a pivotal email to the patient navigator for the Acoustic Neuroma Program at UCSD asking her about next steps.
So there it is…a decision.
After a month and a half of researching, going to appointments, and getting 3rd and 4th opinions, I’ve finally chosen a surgical team to evict Norman and will need to travel to San Diego to do so. There is one important hoop to clear before formally making things “official” and that involves the lovely matter of insurance. Both surgeons are currently in-network providers and the hospital and medical group they will bill through once they move to UCSD in November are also in-network. That said, I don’t anticipate any issues with them being in-network come 11/1. However, it seems I will still have a couple of weeks of slight uncertainty until I’ve confirmed the in-network status.
So perhaps this is more of an “almost decision.”
Lately I’ve been paying attention to how things sound, where the sound is coming from, and the beauty of hearing in stereo. It hit me hard a few days ago that there will be a days/occasions/every day events prior to my surgery that will be full of “lasts.”
It’s hard to say how I’ll react, but I’m guessing there will be many tears shed as I grieve the loss of 1/2 of one my 5 senses.
I was able to talk with the second surgeon from California this afternoon. He told me similar information regarding saving my hearing – there is a low chance through the retrosigmoid approach but he’d be willing to try if that was my preference. When he asked whether I have headaches and migraines, (and I responded, yes) he again mentioned the increased risk with them becoming chronic with the retro approach and it would have to be something I’d have to weigh the pros and cons. His overall opinion was that I’d be a great candidate for translab surgery and he did not see an issue with the location of my jugular bulb. In his experience, he said that his translab patients have been his happiest patients.
With this most recent opinion, I finally feel confident in choosing a surgical approach. Now I plan to move on to selecting a surgical team/location and time. Deep breath, reality continues to set in…